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Types Of PCOS
A myPCOSteam Member asked a question 💭

How did you guys find out what type of PCOS you had? I NEVER knew there were types. I know it affects everyone differently just didn't know there were specific PCOS. I was diagnosed in 2014 after changing doctors for the 3rd time. She actually took the time to listen to me when I informed her of all of what I have been experienced but she left before we could get a hold on my PCOS. I get so depressed thinking about difficult it is to conceive.

posted June 23, 2020
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A myPCOSteam Member

Well I loved the on I had when I moved back to CT with my then fiancee now husband. She was kind and sweet and she actually listened and took me seriously. I liked her so much that for the first almost two years when we came back to Virginia I traveled to CT just to see her but my new insurance wouldn't cover " maintance" care in a different state and then I lost my insurance completely for a while so I had to leave her. She was amazing and sadly for the life of me I can't remember her name😭in my experience most people including doctors don't really take PCOS very seriously. It gets brushed off a lot and I can't tell you how many times I hear it's all in my head or in just lazy. It's a nightmare trying to get someone who has never experienced the symptoms on a regular basis what it is like day to day, and then when you add an autoimmunity disease( or two in my case) and then memory recall issues and trauma issues and panic issues and anxiety issues their are days where I literally can not function and when those days turn into weeks and then months and sometimes even years even the most patient and empathetic of people get frustrated. It is absolutely amazing though how much things can change just from having a decent support system

posted July 1, 2020
A myPCOSteam Member

I cannot believe a doctor would say that to you. It is not healthy not having a period. My daughter was diagnosed with PCOS snd possible other problems and was told getting pregnant was likely going to be complicated. She is 22 and single but she is very upset she may be infertile, especially if there is also a pituitary issue possibly going on. Get yourself a good endocrinologist that also specializes in fertility if you want to try to have a baby. and forget what that doctor said to you. People don’t think. My daughter had to go back to the lab a week later for more blood tests to check for more issues and the tech, while good at drawing blood questioned my daughter saying she seems young to have so many problems. It upset my daughter even if the tech didn’t mean to upset her but just wasn’t thinking.

posted June 27, 2020
A myPCOSteam Member

I know what you are feeling from my daughter. Even now we are not 100 percent sure she has PCOS but she absolutely has a lot of hormonal issues. She has gone for many blood tests and repeated a few but still has to undergo more testing. Her endocrinologist is now looking into pituitary issues and while she never outright said this, I know she is looking for a possible pituitary tumor based on the hormone levels but the blood tests need to be repeated until insurance will pay for an MRI. I guess there is still a lot not known about PCOS but I think you can have PCOS and a pituitary issue as well as other autoimmune issues. Her primary physician is now also having her undergo blood tests, including one for rheumatoid arthritis. I feel having a good support system is so important but only recently my daughter started opening up to me about her concerns. I know fertility is a big concern but I think she needs to concentrate on getting her hormones more balanced first.

It is a shame insurance is an issue when you found a doctor you liked but nothing is ever easy is it? Have you gotten more then one opinion about your conditions? I told my daughter maybe she needs another opinion. I feel this is just a very long process and it is going to take time getting answers and even then, should she get another opinion depending on what she is told? It never dawned on me that her not getting her period for months at a time could turn into this. I never thought of PCOS or pituitary problems or even considered the consequences of these disorders. So, while I do not have PCOS myself I do feel for you and relate to your frustrations since I see what this is all doing to my daughter. She is single and not trying to have a baby now but I know fertility is on her mind for the future and I am concerned for her. There are no fertility issues in my family and I think I took fertility for granted because I had no real issues but now I am starting to realize there are people out there with a lot of issues and am seeing it firsthand now with my daughter having these hormonal issues.

posted July 2, 2020
A myPCOSteam Member

What an awful story and it was terrible what was said to you. I swear people just don’t think sometimes about how their words can hurt. I hope you have a better experience with any future doctors you use. I have had two really awful experiences with rude doctors through the years and honestly I know they are not my friends but there is no excuse to be rude or nasty no matter how superior they feel they may be, but I have also had some very nice doctors so it’s just a matter of finding one you feel is good but also has at least a decent bedside manner.

posted June 30, 2020
A myPCOSteam Member

Yes it was such a fight for so many years.when I had my first misscarrige at 16 I found out during my ultra sound that my pregnancy just stopped developing around 14 weeks, I went in for ultra sound and the tech was all bright and cheery but then as she was moving the wand around her whole face just fell and she went silent, then she started putting everything away and said she would be right back, I sat in that room in the dark for over an hour before finally my on came in he walked in put his foot up on the stool looked me dead in the face and said " well you just narrowly escaped being a teenage mother you should thank God he stopped the development of your baby when he did any longer and this would have been really painful when you misscarry. If you want to we can go ahead with a dnc and suck it out with the vacume or you can just wait it out. Call me on Monday and let me know" and put his foot back down. Then he just walked out of the room.l was left sitting their confused and scared to process everything by myself. I never went back to him

posted June 29, 2020

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