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Real members of myPCOSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Ever Been Told By One Doctor That They Might Have PCOS Only To Find Out A Few Years Later That U Have PCOS?

A myPCOSteam Member asked a question 💭

The time I was told that I may have PCOS I was with my ex. I'd come off the pill cerazette in the April of 2012, but my periods reappeared a heck of a lot lighter than they were and it was like they were never gonna stop, so I told my ex that I would leave seeing the doctor until the New Year to give them a chance to return to "normal" as I'd been on the pill for years and I want to give my periods a chance to settle before I contacted the doctors
The following year around February or March I… read more

posted June 15
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A myPCOSteam Member

I was diagnosed with type 2 diabetes in September 2022

posted July 7
A myPCOSteam Member

Hi there! I’m sorry that you went through the first misdiagnosis. This happened to me as well—an ob/gyn that I was attending diagnosed me as not having PCOS after I’d gotten off birth control, and over a year later my primary care doctor asked if I’d ever been tested for PCOS before. I said yes, and she ran more tests because she thought I did have it. Turns out, I did (my cycles were irregular, my testosterone levels were very high, and my glucose levels were high). She diagnosed me in 2013.

posted June 24
A myPCOSteam Member

No one could figure out what was causing my heavy painful periods until I was diagnosed with PCOS in around 2015.
Mine had been (and still every now and again when they decide to be) awful since the day I first started mine which was around my 13th birthday in 1995 (I'm 41 now and I have a 21 year old daughter). I was in my early to mid 30s when I was diagnosed with PCOS.

posted June 19
A myPCOSteam Member

Yes. I was “suspected” to have PCOS by multiple doctors in my early 20s but none of them officially diagnosed me because I am not overweight. I was only recently officially diagnosed by ultrasound and specific urine testing (DUTCH test) that showed elevated testosterone (blood test was within normal range as well as other blood tests) and an ultrasound with chains of cysts on ovaries. No one believed me or diagnosed me until this past year though and I’m now 30.

posted June 15

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