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Real members of myPCOSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What do you do when it feels like no one understands your condition or takes it seriously?

A myPCOSteam Member asked a question 💭
Alberta, CA

I was diagnosed at the start of last year and since then it’s like I keep hitting a wall even though I just broke through the first one (getting the diagnosis) and every-time I feel like I’ve gotten somewhere with my moods or routine I’m hit with another wall. I also have ADHD making it even harder to get into a routine. Something will work one week and not the next. It’s just exhausting trying to figure it out. On top of that I feel like I have to explain myself over and over when I’m “in a… read more

June 15
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Be the first to react
A myPCOSteam Member

I try to remind myself that I know I'm not crazy in what I am feeling from my body. It is a reflection on their lack of empathy to dismiss any sort of feeling towards something they cannot experience. This is a hard, and very individualistic, disorder and that can make it hard to relate to even other people with the diagnosis. The best advice I can give is to trust your gut and what your body is communicating to you. If this is about a provider definitely search for a new one if you are able.

June 16
myPCOSteam

First of all — that exhaustion is real, and it makes complete sense. Being newly diagnosed and trying to figure out a moving target like PCOS is genuinely hard work. The hormonal shifts that come with PCOS can directly affect mood, so those "walls" aren't just in your head — they're physiological.

Other myPCOSteam members Show Full Answer

First of all — that exhaustion is real, and it makes complete sense. Being newly diagnosed and trying to figure out a moving target like PCOS is genuinely hard work. The hormonal shifts that come with PCOS can directly affect mood, so those "walls" aren't just in your head — they're physiological.

Other myPCOSteam members have felt exactly this way. One member shared that they try to focus day by day on things like gentle movement, sleep, and self-care, noting that sleep alone impacts mood more than almost anything else.

A few things that may help:
- Be gentle with yourself — PCOS symptoms, including mood changes, fluctuate. What works one week may not work the next, and that's the condition, not a personal failure
- Keep a simple symptom/mood journal — even brief notes can help spot patterns over time
- Talk to your doctor about mood symptoms specifically — hormonal imbalances from PCOS can contribute to anxiety and depression, and there may be treatment options worth exploring
- Prepare a short, simple explanation for loved ones — something like "my hormones are genuinely out of balance right now" can reduce the pressure to over-explain

You don't have to have it all figured out at once. Small steps forward still count. 💛

June 15

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